ALS News Today Forums | Janice | Activity https://alsnewstoday.com/forums/members/gladone5/activity/ Activity feed for Janice. Sun, 19 Apr 2026 05:29:35 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 598c22e07a68f9307ef6695e36d4d8fd Janice replied to the discussion I NO LONGER SWALLOW in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/i-no-longer-swallow/#post-20900 Tue, 02 Nov 2021 21:33:19 -0500 Reply to I NO LONGER SWALLOW

I TAKE A FEW PROTEIN POWDERS AND I SEARCH THEM TO BE NO SUGAR AND GLUTEN.  I USE PRODUCTS FROM AMAZON. I JUST PURCHASED A CANNISTER OF MACROLIFE – MACRO MEAL A SUPERFOOD.  WHEN I TAKE THIS IN THE MORNING I DON’T USUALLY FEEL SLEEPY IN THE AFTERNOONS.

I’LL START THIS EVENING AND POST MY EFFORTS.

 

]]> 42843f14a6309f659c60d0e5c94ae399 Janice started the discussion I NO LONGER SWALLOW in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/i-no-longer-swallow/ Thu, 28 Oct 2021 13:29:32 -0500 I NO LONGER SWALLOW

I FIND THAT I ONLY USE THE FOOD TUBE. WHEN I EAT BY MOUTH I FIND THAT I DEAL WITH EXCESS SALIVA AND I COUGH. I TAKE GLYCOPYRRALATE FOR EXCESS SALIVA AND THAT HELPS. I TAKE MANY SUPPLEMENTS AND POWDERS AND THAT MAKES ME FEEL BETTER. I USE WATER BEFORE AND AFTER TAKING BY FOOD TUBE.

]]> 31aec89215c6d474a40ee8895921f49b Janice replied to the discussion Familial ALS in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/familial-als/#post-20770 Fri, 15 Oct 2021 13:38:52 -0500 Reply to Familial ALS

THANK YOU MEREDITH WITH THIS INFORMATION.  I’LL TALK WITH MY PCP AND THE ALS DOCTOR REGARDING THIS.  JAN

]]> e61e2f247b0bcbe114c10584a226eaf7 Janice replied to the discussion Familial ALS in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/familial-als/#post-20764 Thu, 14 Oct 2021 23:59:59 -0500 Reply to Familial ALS

MY MOTHER AND HER 3 BROTHERS HAD ALZHEIMERS.  I WAS DIAGNOSED WITH BULBAR ALS THIS SPRING.  MY HUSBAND BUD PASSED ON 10-10-2016 AND WE ATE A LOT OF SUGAR IN SWEETS AT OUR PICNICS AND MY SISTER’S FAMILY BIRTHDAYS AND CHRISTMAS GET TO-GETHERS.  I DO NOT EAT ICECREAM OR SWEETS NOW.  I PUREE ALL MY FOOD FOR THE TUBE FEEDING AND STILL CAN WALK… Read more

]]> 9d5a36fb606c5fcb6fd8291abd377bad Janice replied to the discussion Member Check In (pALS, caregivers, and other community members) in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/member-check-in-pals-caregivers-and-other-community-members/#post-20711 Mon, 11 Oct 2021 17:23:35 -0500 Reply to Member Check In (pALS, caregivers, and other community members)

HELLO TODAY – I HAVE BULBAR ALS AND NEUROPATHY.  I TAKE AMITRIPYLINE 50MG AT NIGHT AND IT HELPS WITH NEUROPATHY.  I’VE ALSO TAKEN MANY SUPPLEMENTS FOR PAIN.  DOES ANYONE HAVE OTHER IDEAS FOR PAIN.  JAN WEST

]]> fa892126c7f252ea515ea5bd78934d99 Janice replied to the discussion Member Check In (pALS, caregivers, and other community members) in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/member-check-in-pals-caregivers-and-other-community-members/#post-20616 Thu, 30 Sep 2021 21:49:59 -0500 Reply to Member Check In (pALS, caregivers, and other community members)

Hello all – I will get stem cells this year.  They really worked well last year.  They took the pain away.  I’m glad I moved to NC 2 years ago with my eldest son, Mike.  Jan West

]]> a7120433005085f11a8d477f7a72c283 Janice replied to the discussion Member Check In (pALS, caregivers, and other community members) in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/member-check-in-pals-caregivers-and-other-community-members/#post-20609 Thu, 30 Sep 2021 16:38:16 -0500 Reply to Member Check In (pALS, caregivers, and other community members)

Hello everyone – does anyone have bulbar ALS which I have?  I would appreciate your thoughts on this and thank you!   Janice West

]]> 7c39f11c7862992fe7e1ed980a07004d Janice replied to the discussion Stem Cell therapy for ALS in the forum Using Our Forums https://alsnewstoday.com/forums/forums/topic/stem-cell-therapy-for-als/#post-20448 Fri, 10 Sep 2021 17:18:44 -0500 Reply to Stem Cell therapy for ALS

HELLO YES I’VE HAD 2CC OF STEM CELLS IN AUGUST 2020 AND MY SON PAID FOR IT.  I FELT BETTER FOR MONTHS AND IT LASTS 9 MONTHS AND I’LL TRY IT AGAIN.

]]> 6b00f6beb8a63d28369f0a3647cd7c18 Janice replied to the discussion Reflections and Looking Ahead in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/reflections-and-looking-ahead/#post-17296 Thu, 31 Dec 2020 14:48:58 -0600 Reply to Reflections and Looking Ahead

Thank you for this forum. I realize now how many people have ALS. I never would expect these symptoms but in my body they are now swelling muscles. I can still walk and do my chores but wonder how much longer can I exist.

]]> 02434663dc4729779a8abd5bc56d9e71 Janice posted a new activity comment https://alsnewstoday.com/forums/activity/p/9121/#acomment-9124 Sat, 05 Dec 2020 16:20:20 -0600 I KNOW HOW YOU FEEL AND IT IS SHOCKING ABOUT THIS ALS CONDITION AND HOW OUR BODIES FEEL. OOH, BUT KEEP UP YOUR FAITH AS I AM AND THANK GOD EACH DAY WE ARISE!

In reply to - James changed their profile picture ]]> 290fe368202ca98dc70a9af2d6a97039 Janice posted an update: I'M HAPPY TO BE LIVING WITH MY SON,MIKE, MY CARETAKER. […] https://alsnewstoday.com/forums/activity/p/9123/ Sat, 05 Dec 2020 16:18:57 -0600 I’M HAPPY TO BE LIVING WITH MY SON,MIKE, MY CARETAKER. HE IS AN EXCELLENT SON AND ALWAYS SAID, “MOM & DAD” I’LL TAKE CARE OF YOU WHEN IT IS TIME! MY HUSBAND, BUD, PASSED ON 10-12-2016 AND THANKFUL I AM STILL ALIVE. I THANK GOD EACH DAY I ARISE!

]]> 0 477530ef6788429230e450f22ddb5c30 Janice replied to the discussion Living Longer with ALS in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/being-are-living-longer-with-als/#post-16937 Thu, 26 Nov 2020 23:10:43 -0600 Reply to Living Longer with ALS

Hello this is Jan from NC and I had 2cc of stem cells on October 24, 2020. In the past 3 years I’ve had prediabetes and no meds because my numbers were lower. I eat organic food and puree it because I’ve lost my chewing. In the past I took three different meds for acid reflux. After that, I lost my voice. I take many supplements especially… Read more

]]> 7a5bb74315a6544a25b2ba0f7f8087db Janice posted an update: I'M HOPING SOMETHING NEW FOR ALS PATIENTS COMES UP IN […] https://alsnewstoday.com/forums/activity/p/8852/ Fri, 20 Nov 2020 00:06:49 -0600 I’M HOPING SOMETHING NEW FOR ALS PATIENTS COMES UP IN THE NEAR FUTURE – SOMETHING FOR ALL OVER BODY PAIN AND FEET NEUROPATHY. I THANK OUR LORD EACH MORNING I ARISE AND LOVE MY FAMILY!!

]]> 0 cd357476036d2ef2c95175ede2203914 Janice became a registered member https://alsnewstoday.com/forums/activity/p/8694/ Wed, 11 Nov 2020 00:40:15 -0600 2