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Ashley Fisher

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@gv2als

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    Ashley Fisher posted a new activity comment 2 years, 8 months ago

    That’s fantastic news. Congratulations on being so strong and having such a positive attitude. Thank you for the link. I’ll definitely be reading it. This makes me very happy to hear. I’m excited I’ve joined this forum. 😉

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    Ashley Fisher changed their profile picture 2 years, 8 months ago

  • Profile picture of Ashley Fisher

    Ashley Fisher changed their profile picture 2 years, 8 months ago

  • Profile picture of Ashley Fisher

    Ashley Fisher changed their profile picture 2 years, 8 months ago

  • Profile picture of Ashley Fisher

    Ashley Fisher changed their profile picture 2 years, 8 months ago

  • Profile picture of Ashley Fisher

    Ashley Fisher changed their profile picture 2 years, 8 months ago

  • Profile picture of Ashley Fisher

    Ashley Fisher posted a new activity comment 2 years, 8 months ago

    Thank you! I’m happy to be here.
    I have one question, how have you managed to stay in this world for 9 yrs after diagnosis? That’s incredible!

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    • Profile picture of Dagmar Munn
      Dagmar Munn replied 2 years, 8 months ago

      Hi Ashley, Yes… 9 years now! I am walking (with a rollator), eating, speaking and ‘breathing’ 🙂 …it can be done 🙂

      I write a column Living Well with ALS, https://alsnewstoday.com/category/living-well-with-als/ where I share tips and motivation for resilience and living with ALS. Also, my personal blog ALS and Wellness,…[Read more]

      • Profile picture of Ashley Fisher
        Ashley Fisher replied 2 years, 8 months ago

        That’s fantastic news. Congratulations on being so strong and having such a positive attitude. Thank you for the link. I’ll definitely be reading it. This makes me very happy to hear. I’m excited I’ve joined this forum. 😉

      • Profile picture of Roxanne Kusske
        Roxanne Kusske replied 2 years, 8 months ago

        But have you done anything specific to be able to still walk, breath and eat? All I’ve seen and read is how quickly it takes over all of those things. I know it effects everyone differently, but my husband is convinced he’s going to die tomorrow! Just because he feels crappy most of the time. He was only just diagnosed in August of this year,…[Read more]

        • Profile picture of Amanda
          Amanda replied 2 years, 8 months ago

          Roxanne,
          This is a safe place to vent. You are welcomed to vent, share you fears , and ask all the questions you want. The ALS forum members are absolutely wonderful and very supportive! I am glad that you have joined. Please continue to ask questions and you are welcomed to post discussion topics too.

          Amanda

  • Profile picture of Ashley Fisher

    Ashley Fisher became a registered member 2 years, 8 months ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 2 years, 8 months ago

      Hello Ashley, Welcome to the forum! I am one of the forum moderators, as well as a person who is living with ALS; I was diagnosed in 2010. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. The easiest way to see what is current is to click…[Read more]

      • Profile picture of Ashley Fisher
        Ashley Fisher replied 2 years, 8 months ago

        Thank you! I’m happy to be here.
        I have one question, how have you managed to stay in this world for 9 yrs after diagnosis? That’s incredible!

        • Profile picture of Dagmar Munn
          Dagmar Munn replied 2 years, 8 months ago

          Hi Ashley, Yes… 9 years now! I am walking (with a rollator), eating, speaking and ‘breathing’ 🙂 …it can be done 🙂

          I write a column Living Well with ALS, https://alsnewstoday.com/category/living-well-with-als/ where I share tips and motivation for resilience and living with ALS. Also, my personal blog ALS and Wellness,…[Read more]

          • Profile picture of Ashley Fisher
            Ashley Fisher replied 2 years, 8 months ago

            That’s fantastic news. Congratulations on being so strong and having such a positive attitude. Thank you for the link. I’ll definitely be reading it. This makes me very happy to hear. I’m excited I’ve joined this forum. 😉

          • Profile picture of Roxanne Kusske
            Roxanne Kusske replied 2 years, 8 months ago

            But have you done anything specific to be able to still walk, breath and eat? All I’ve seen and read is how quickly it takes over all of those things. I know it effects everyone differently, but my husband is convinced he’s going to die tomorrow! Just because he feels crappy most of the time. He was only just diagnosed in August of this year,…[Read more]

            • Profile picture of Amanda
              Amanda replied 2 years, 8 months ago

              Roxanne,
              This is a safe place to vent. You are welcomed to vent, share you fears , and ask all the questions you want. The ALS forum members are absolutely wonderful and very supportive! I am glad that you have joined. Please continue to ask questions and you are welcomed to post discussion topics too.

              Amanda

    • Profile picture of Roxanne Kusske
      Roxanne Kusske replied 2 years, 8 months ago

      Well, he is a very stubborn man, and does not have a very positive attitude; more on the side of “it is what it is”, and “what will be will be”. And definitely will not try a supplement program. But he doesn’t feel sorry for himself, and actually feels lucky to have lived as long as he has, as apposed to young children that get cancer and die at…[Read more]

    • Profile picture of Roxanne Kusske
      Roxanne Kusske replied 2 years, 8 months ago

      He did express interest in doing a trial, but we need to get information on where and when as long as it’s close to home, and then get transportation lined up as well. So I’ll talk to him about that soon and see how he feels. Thanks for your help.

    • Profile picture of Roxanne Kusske
      Roxanne Kusske replied 2 years, 8 months ago

      We live in Mayer, MN.

      • Profile picture of Dagmar Munn
        Dagmar Munn replied 2 years, 8 months ago

        Roxanne – I agree with Ashley that you can vent anytime here 🙂 We are a support community of like-minded folks. I also agree that attitude is important – – but it does take time to get to that optimistic state of mind – – especially so soon after being diagnosed. I look back, and realize that hearing this diagnosis is really a ‘traumatic event.’…[Read more]

        • Profile picture of Dagmar Munn
          Dagmar Munn replied 2 years, 8 months ago

          Ashley – – I am sorry, but I must speak up and mention that the Deanna Protocol is a controversial diet regimen and has had zero human studies (all have been on mice). It is not recommended for ALS patients. You can choose to follow it and purchase the “product” – – but it is not appropriate to promote to others without them knowing it’s lack of…[Read more]

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