@gv2als
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Ashley Fisher posted a new activity comment 2 years, 8 months ago
That’s fantastic news. Congratulations on being so strong and having such a positive attitude. Thank you for the link. I’ll definitely be reading it. This makes me very happy to hear. I’m excited I’ve joined this forum. 😉
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Ashley Fisher changed their profile picture 2 years, 8 months ago
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Ashley Fisher changed their profile picture 2 years, 8 months ago
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Ashley Fisher changed their profile picture 2 years, 8 months ago
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Ashley Fisher changed their profile picture 2 years, 8 months ago
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Ashley Fisher changed their profile picture 2 years, 8 months ago
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Ashley Fisher posted a new activity comment 2 years, 8 months ago
Thank you! I’m happy to be here.
I have one question, how have you managed to stay in this world for 9 yrs after diagnosis? That’s incredible!-
Hi Ashley, Yes… 9 years now! I am walking (with a rollator), eating, speaking and ‘breathing’ 🙂 …it can be done 🙂
I write a column Living Well with ALS, https://alsnewstoday.com/category/living-well-with-als/ where I share tips and motivation for resilience and living with ALS. Also, my personal blog ALS and Wellness,…[Read more]
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That’s fantastic news. Congratulations on being so strong and having such a positive attitude. Thank you for the link. I’ll definitely be reading it. This makes me very happy to hear. I’m excited I’ve joined this forum. 😉
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But have you done anything specific to be able to still walk, breath and eat? All I’ve seen and read is how quickly it takes over all of those things. I know it effects everyone differently, but my husband is convinced he’s going to die tomorrow! Just because he feels crappy most of the time. He was only just diagnosed in August of this year,…[Read more]
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Roxanne,
This is a safe place to vent. You are welcomed to vent, share you fears , and ask all the questions you want. The ALS forum members are absolutely wonderful and very supportive! I am glad that you have joined. Please continue to ask questions and you are welcomed to post discussion topics too.Amanda
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Ashley Fisher became a registered member 2 years, 8 months ago
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Hello Ashley, Welcome to the forum! I am one of the forum moderators, as well as a person who is living with ALS; I was diagnosed in 2010. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. The easiest way to see what is current is to click…[Read more]
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Thank you! I’m happy to be here.
I have one question, how have you managed to stay in this world for 9 yrs after diagnosis? That’s incredible!-
Hi Ashley, Yes… 9 years now! I am walking (with a rollator), eating, speaking and ‘breathing’ 🙂 …it can be done 🙂
I write a column Living Well with ALS, https://alsnewstoday.com/category/living-well-with-als/ where I share tips and motivation for resilience and living with ALS. Also, my personal blog ALS and Wellness,…[Read more]
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That’s fantastic news. Congratulations on being so strong and having such a positive attitude. Thank you for the link. I’ll definitely be reading it. This makes me very happy to hear. I’m excited I’ve joined this forum. 😉
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But have you done anything specific to be able to still walk, breath and eat? All I’ve seen and read is how quickly it takes over all of those things. I know it effects everyone differently, but my husband is convinced he’s going to die tomorrow! Just because he feels crappy most of the time. He was only just diagnosed in August of this year,…[Read more]
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Roxanne,
This is a safe place to vent. You are welcomed to vent, share you fears , and ask all the questions you want. The ALS forum members are absolutely wonderful and very supportive! I am glad that you have joined. Please continue to ask questions and you are welcomed to post discussion topics too.Amanda
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Well, he is a very stubborn man, and does not have a very positive attitude; more on the side of “it is what it is”, and “what will be will be”. And definitely will not try a supplement program. But he doesn’t feel sorry for himself, and actually feels lucky to have lived as long as he has, as apposed to young children that get cancer and die at…[Read more]
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He did express interest in doing a trial, but we need to get information on where and when as long as it’s close to home, and then get transportation lined up as well. So I’ll talk to him about that soon and see how he feels. Thanks for your help.
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We live in Mayer, MN.
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Roxanne – I agree with Ashley that you can vent anytime here 🙂 We are a support community of like-minded folks. I also agree that attitude is important – – but it does take time to get to that optimistic state of mind – – especially so soon after being diagnosed. I look back, and realize that hearing this diagnosis is really a ‘traumatic event.’…[Read more]
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Ashley – – I am sorry, but I must speak up and mention that the Deanna Protocol is a controversial diet regimen and has had zero human studies (all have been on mice). It is not recommended for ALS patients. You can choose to follow it and purchase the “product” – – but it is not appropriate to promote to others without them knowing it’s lack of…[Read more]
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