@hpglegaol-com
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Lynn Goldberger Gross replied to the topic What is, or has been the biggest adjustment for you in living with ALS? in the forum Living With ALS 7 months, 3 weeks ago
Getting up from a chair. Any affordable good recliners? Help
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Lynn Goldberger Gross replied to the topic Riluzole and Radicava in the forum Living With ALS 9 months, 1 week ago
Bill. I am curious about the side effects your friends have experienced from Rilizole. My husband has been on it for a year and and within the last few months , he has passed out and fallen. One of these required a hospital visit. What side effects do your ALS friend complain about? Is dry mouth one of them?
I’m not happy with the ALS clin…[Read more]
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Lynn Goldberger Gross replied to the topic CLENBUTEROL in the forum Research Topics 11 months, 1 week ago
This is my first time participating in this forum. After reading about these trials, I feel that my husband, who has ALS , would not be helped by going into the third phase of a trial. He may be offered a spot in the Reldesemtiv ( cytokinetics) trial phase 3 and I have gleaned from everyone’s responses, these trials are really for the next gene…[Read more]
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Lynn Goldberger Gross became a registered member 11 months, 1 week ago
Hello Lynn,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS a…[Read more]