@isabellemartinuk
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Isabelle posted a new activity comment 9 months ago
Radicava is not available in UK
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Isabelle posted a new activity comment 9 months ago
My doctor is going to prescribe me riluzol but seems to be almost useless , and they want me to have blood tests everymonth because of the dangers of the medicine
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Isabelle posted a new activity comment 9 months ago
I was diagnosed recently with speech difficulties , painful cramps and loss of strenght left hand , I intend to fight to delay the worse so been starting with supplements , so far CBD oil has improved a lot my symptoms , almost no cramps , no pain and sleeping better , also taking multivitamin, l serine , theracurmin and a few others , would like…[Read more]
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hello Isabelle, I am glad that the CBD oil is helping you. Most ALS patients are taking one of the approved medications: Riluzole and/or Radicava. There is a lot of controversy about the benefits of supplements, some help, some don’t. ALS reversal is a topic of interest but no one has yet discovered how to replicate the ones who have done it.…[Read more]
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My doctor is going to prescribe me riluzol but seems to be almost useless , and they want me to have blood tests everymonth because of the dangers of the medicine
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Radicava is not available in UK
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I have been taking Riluzole for 12 years now and so far, zero side effects. My doctor originally had me do labs every 3 months so she could check if it had any effect on my liver. Seeing none, I now do labs every 6 mos., which coincides with my clinic visits. I suggest you have another conversation with your doctor about it. Since you have no…[Read more]
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Isabelle became a registered member 9 months ago
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Hello Isabelle,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing…[Read more]
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I was diagnosed recently with speech difficulties , painful cramps and loss of strenght left hand , I intend to fight to delay the worse so been starting with supplements , so far CBD oil has improved a lot my symptoms , almost no cramps , no pain and sleeping better , also taking multivitamin, l serine , theracurmin and a few others , would like…[Read more]
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hello Isabelle, I am glad that the CBD oil is helping you. Most ALS patients are taking one of the approved medications: Riluzole and/or Radicava. There is a lot of controversy about the benefits of supplements, some help, some don’t. ALS reversal is a topic of interest but no one has yet discovered how to replicate the ones who have done it.…[Read more]
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My doctor is going to prescribe me riluzol but seems to be almost useless , and they want me to have blood tests everymonth because of the dangers of the medicine
-
Radicava is not available in UK
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I have been taking Riluzole for 12 years now and so far, zero side effects. My doctor originally had me do labs every 3 months so she could check if it had any effect on my liver. Seeing none, I now do labs every 6 mos., which coincides with my clinic visits. I suggest you have another conversation with your doctor about it. Since you have no…[Read more]
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Hello Isabelle,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an e…[Read more]
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Radicava is not available in UK
I have been taking Riluzole for 12 years now and so far, zero side effects. My doctor originally had me do labs every 3 months so she could check if it had any effect on my liver. Seeing none, I now do labs every 6 mos., which coincides with my clinic visits. I suggest you have another conversation with your doctor about it. Since you have no…[Read more]