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John Addy replied to the topic Which ALS-related science, research, etc. topic is on your radar right now? in the forum Research Topics 23 hours, 53 minutes ago
Gene therapy is on my radar
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John Addy replied to the topic Travel Tips?? in the forum Living With ALS 1 month ago
I live in dfw. I’m having a scooter designed for me by numotion contact Tom. If you are interested in this contact l can give you more information
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John Addy replied to the topic Study Suggests a New Spinal Delivery Method Renders Stem Cell Therapy Safer, More Effective for ALS in the forum Flash Briefings 4 months, 3 weeks ago
Look for Capsida and Crispr
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John Addy replied to the topic Genetics, How Does this Knowledge Change Things for You? in the forum Research Topics 9 months, 4 weeks ago
My maternal grandfather was diagnosed in 1968 and scientists at that time thought it skipped generations. My mom died of brain cancer in 2007 at 68 years old. Then my oldest brother got it and died in 2012. My middle brother got it and died in 2017. Seemed to me that it did in fact skip the generation. Then I was diagnosed in 2018. My gene…[Read more]
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John Addy replied to the topic ALS and Pain in the forum Living With ALS 10 months, 1 week ago
I only have cramps all over my body. They hurt worse in the abdomen. I also have scaly skin on my forehead especially around my eye brows. I have minimal muscles in my hands and arms. I am positive about this because of my faith. I know where I’m going after this so my anchor is in the Rock
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John Addy replied to the topic Another theory! Causes of ALS in the forum ALS News 10 months, 1 week ago
My grandfather and all his siblings died of this disease and also my two brothers so mine is genes
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John Addy replied to the topic Another theory! Causes of ALS in the forum ALS News 10 months, 1 week ago
Me too Texas
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John Addy replied to the topic Do You Think You Match the Results of this ALS Survey? in the forum Living With ALS 10 months, 2 weeks ago
Listen to the song “Wonderful Life” by Mathew West. It sums up my views. It’s on YouTube aa well
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John Addy replied to the topic ALS and Pain in the forum Living With ALS 11 months ago
My pain is all about my cramps, I have no pain other than that. Sorry I could not be of more help.
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John Addy replied to the topic I would like to remember those in my family who have lost their battle with ALS in the forum In Loving Memory 11 months, 1 week ago
Thank you Dagmar
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John Addy replied to the topic I would like to remember those in my family who have lost their battle with ALS in the forum In Loving Memory 11 months, 1 week ago
Thank you Amanda
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John Addy replied to the topic Applying for disability and medicare in the forum Living With ALS 11 months, 1 week ago
Thank you Dagmar
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John Addy replied to the topic Applying for disability and medicare in the forum Living With ALS 11 months, 1 week ago
Thank you Kathy
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John Addy posted an update 11 months, 2 weeks ago
@amanda-sifford I have many family members too
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John Addy replied to the topic Applying for disability and medicare in the forum Living With ALS 11 months, 2 weeks ago
I was diagnosed in 2019. I can not get disability because I do not have enough work credits. Is there any hope for me getting Medicare to help with expenses and services ?
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John Addy replied to the topic Is anyone getting the 4th shot/booster? in the forum Coronavirus (COVID-19) and ALS 11 months, 2 weeks ago
I am in a clinical study and can not do anything without checking with my study coordinator
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John Addy started the topic I would like to remember those in my family who have lost their battle with ALS in the forum In Loving Memory 11 months, 2 weeks ago
Leonard Wayne Hood, Aleta Hood, Wayne Addy. Sam Addy- may we meet again someday
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John Addy posted a new activity comment 11 months, 2 weeks ago
Thank you Dagmar for the welcome message. I live in Arthur City Texas and have good doctors in Dallas
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To also help answer your question about applying for medicare with no SSDI, here is your local ALS Assoc. chapter https://www.alstexas.org/about-us/what-we-do/ They will have a person on staff who can assist you in application & qualification.
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John Addy became a registered member 11 months, 2 weeks ago
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Hello John,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Thank you Dagmar for the welcome message. I live in Arthur City Texas and have good doctors in Dallas
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To also help answer your question about applying for medicare with no SSDI, here is your local ALS Assoc. chapter https://www.alstexas.org/about-us/what-we-do/ They will have a person on staff who can assist you in application & qualification.
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Hello John,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]
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