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Janice Andreasen

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@janicea

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  • Profile picture of Janice Andreasen

    Janice Andreasen became a registered member 2 years, 9 months ago

    • Profile picture of Amanda
      Amanda replied 2 years, 9 months ago

      Hello Janice, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]

      • Profile picture of Frankie a reex
        Frankie a reex replied 2 years, 8 months ago

        Hello Amanda my name is frankie it would be my pleasure to welcome you as a friend I am pretty new to this I was diagnosed with ALS 15 months ago however I was mis diagnosed for over a year or abouts my upper body is almost gone I really don’t have any one to help me deal with this disease so since I am not able to take care of myself I’ve been…[Read more]

        • Profile picture of Amanda
          Amanda replied 2 years, 8 months ago

          Frankie,
          I’m sorry I didn’t see this message sooner. I just responded to your post, and now that I’ve read this message some of my questions have been answered. Please don’t feel like you are taking up my time. I have compassion for what you are going through. To say it is difficult is an understatement. Does the Hospice program have counselors…[Read more]

          • Profile picture of Frankie a reex
            Frankie a reex replied 2 years, 8 months ago

            Amanda I am interested in any trials that promote treatment new medications just any thing that will.help

            • Profile picture of Amanda
              Amanda replied 2 years, 8 months ago

              I sent you the ALS Association’s number for your local chapter. They should be able to help you research and reach out for help. Also, sometimes our community members may have some suggestions on what to look into. I’ll post a discussion topic.

            • Profile picture of Dagmar Munn
              Dagmar Munn replied 2 years, 8 months ago

              Frankie – – have you seen this online compilation of current clinical trials? It is up to date and very helpful.

              ALS Signal: Clinical Research Dashboard

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