show less
show more
@janicea
-
Janice Andreasen became a registered member 1 year, 8 months ago
Janice Andreasen became a registered member 1 year, 8 months ago
Hello Janice, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]
Hello Amanda my name is frankie it would be my pleasure to welcome you as a friend I am pretty new to this I was diagnosed with ALS 15 months ago however I was mis diagnosed for over a year or abouts my upper body is almost gone I really don’t have any one to help me deal with this disease so since I am not able to take care of myself I’ve been…[Read more]
Frankie,
I’m sorry I didn’t see this message sooner. I just responded to your post, and now that I’ve read this message some of my questions have been answered. Please don’t feel like you are taking up my time. I have compassion for what you are going through. To say it is difficult is an understatement. Does the Hospice program have counselors…[Read more]
Amanda I am interested in any trials that promote treatment new medications just any thing that will.help
I sent you the ALS Association’s number for your local chapter. They should be able to help you research and reach out for help. Also, sometimes our community members may have some suggestions on what to look into. I’ll post a discussion topic.
Frankie – – have you seen this online compilation of current clinical trials? It is up to date and very helpful.