@jeebles
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Gail A replied to the topic EXCESS MUCUS in the forum Living With ALS 1 day ago
There are prescription meds that can help. My husband has been taking Glycopyrrolate since 2019 and that has been very helpful. His doctor recently added Guaifenesin to thin mucus that collects in his throat sometimes. He has a VOCSN machine with cough assist and suction as well as ventilation. Hopefully you are seeing a neurologist at an ALS…[Read more]
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Gail A posted an update 2 weeks ago
I am not so sure this is a helpful place for information. I was hopeful to receive some advice on tilting shower chairs, but this doesn’t seem to be a helpful place for recommendations.
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Gail A started the topic Recommendations for tilting shower chairs in the forum Mobility Aides, Assistive Technology and Medical Equipment 2 weeks, 5 days ago
My husband’s Shower Buddy is no longer adequate for him, so I am trying to research tilting shower chairs. I was hoping to get some advice or recommendations as they are quite expensive and likely cannot be returned if they don’t work out.
Thank you so much!
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Gail A replied to the topic In Memory of Rick Jobus in the forum In Loving Memory 1 month, 1 week ago
For the past three years since my husband’s diagnosis, I have eagerly awaited Rick’s column. As many have said, he had such a gift for words. I noticed there had been a few weeks when there were no columns and fervently hoped that there was some minor medical issue, but that his columns would return. I was so saddened to learn that he has left…[Read more]
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Gail A replied to the topic A cure and hope for ALS (also wanting to know about treating excess saliva) in the forum A Forum for ALS Caregivers 2 months ago
I just wondered if you are able to travel to another country in Europe? From what I can see, the UK has many resources, but traveling there and getting to see a doctor might be very hard. Sadly, it doesn’t seem like there are a lot of resources available to many folks in Europe or other parts of the world. I am truly sad about that. As my hu…[Read more]
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Gail A replied to the topic A cure and hope for ALS (also wanting to know about treating excess saliva) in the forum A Forum for ALS Caregivers 2 months, 2 weeks ago
Hello Iancu, When I wrote last, with some suggestions. I did not know you were from Romania. I did a little looking and found something that might help you. There’s a website http://www.alsworldwide.org and it has a lot of helpful information and. Facebook page but also a “resource finder”. When I clicked that, I was able to enter Romania, and this is wh…[Read more]
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Gail A replied to the topic A cure and hope for ALS (also wanting to know about treating excess saliva) in the forum A Forum for ALS Caregivers 2 months, 2 weeks ago
Dear Iancu, I am so sorry for your situation. I will offer a few suggestions that might help. First I would get a referral from your primary care physician to the nearest ALS clinic. We’ve been going since every three months since my husband was diagnosed in 2019. There your husband would see a number of specialists to help treat his symptoms. Fo…[Read more]
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Gail A started the topic ALS and Incontinence in the forum Living With ALS 1 year ago
I am new to this forum, so forgive me if this topic has been discussed already.
My husband has recently been experiencing urinary incontinence and after ruling out a UTI, I suspect it has a connection to ALS. It’s been a real game changer in terms of daily care, especially caring for someone who is partially paralyzed.
I would appreciate any t…[Read more]
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Gail A became a registered member 1 year ago
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Hello Gail,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Hello Gail, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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Hi Gail, I just answered you in the topic you posted about shower chairs.