@jenwillow
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Jen posted a new activity comment 1 year, 2 months ago
Hi Dagmar! Thanks so much. I’ve been an avid watcher/searcher of the forum for a while (while caregiving for my mom) and it’s exciting to finally have time to be an active member. I look forward to chatting more!
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Jen replied to the topic Urgently referred to ALS clinic. Anyone here have respiratory and bulbar onset? in the forum Diagnosis Information and General Questions 1 year, 2 months ago
Hi Anne,
My mom was diagnosed with bulbar onset about 4 months after her voice started slurring. Hers was similar to yours, where there was definitely a noticeable difference in her voice from morning to evening, and I could tell her voice got weaker throughout the day. It was about 6 months after her diagnosis (so about 10 months after the start…[Read more]
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Jen became a registered member 1 year, 2 months ago
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Hello Jen,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Hi Dagmar! Thanks so much. I’ve been an avid watcher/searcher of the forum for a while (while caregiving for my mom) and it’s exciting to finally have time to be an active member. I look forward to chatting more!
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Great 🙂
Welcome again!
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Hello Jen, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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Jen changed their profile picture 1 year, 2 months ago
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Jen's profile was updated 1 year, 2 months ago
Great 🙂
Welcome again!