ALS News Today Forums | Jen | Activity https://alsnewstoday.com/forums/members/jenwillow/activity/ Activity feed for Jen. Mon, 06 Apr 2026 01:42:45 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 33d5e2b5aa727c2ab88659d718383932 Jen posted a new activity comment https://alsnewstoday.com/forums/activity/p/12652/#acomment-12660 Wed, 07 Jul 2021 17:44:56 -0500 Hi Dagmar! Thanks so much. I’ve been an avid watcher/searcher of the forum for a while (while caregiving for my mom) and it’s exciting to finally have time to be an active member. I look forward to chatting more!

In reply to - Jen became a registered member ]]> 17e035552ee7797eccfb7f0ebe930ade Jen replied to the discussion Urgently referred to ALS clinic. Anyone here have respiratory and bulbar onset? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/urgently-referred-to-als-clinic-anyone-here-have-respiratory-and-bulbar-onset/#post-19825 Wed, 07 Jul 2021 16:01:38 -0500 Reply to Urgently referred to ALS clinic. Anyone here have respiratory and bulbar onset?

Hi Anne,

My mom was diagnosed with bulbar onset about 4 months after her voice started slurring. Hers was similar to yours, where there was definitely a noticeable difference in her voice from morning to evening, and I could tell her voice got weaker throughout the day. It was about 6 months after her diagnosis (so about 10 months after the… Read more

]]> 4b82274d61473affc1a87ddd23e63f14 Jen became a registered member https://alsnewstoday.com/forums/activity/p/12652/ Wed, 07 Jul 2021 12:37:09 -0500 4 eaf1ed713fb03ac547cfbe2dcbf24574 Jen changed their profile picture https://alsnewstoday.com/forums/activity/p/12645/ Tue, 06 Jul 2021 21:50:23 -0500 0 f3cd2fa2a69b8b71fa075210324fc316 Jen updated their profile https://alsnewstoday.com/forums/activity/p/12644/ Tue, 06 Jul 2021 21:46:55 -0500 0