JT Taylor
Forum Replies Created
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Do as much as you can as long as you can. If you like to travel, do it until it is no longer possible or enjoyable. If you like music, attend as many concerts as you like. Don’t worry about the little things. Keep your connections open with your friends and family – life is too short for those disagreements or arguments that are really meaningless. Your friends and your family are your lifeline.
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Hi John, my advice is to travel as much as you can for as long as you can if that’s what you like to do. I am still able to walk, although not too far, but have lost the use of my arms so I’m very dependent on others for assistance. We travelled recently to Jamaica for 2 weeks. Along with my wife came my brother and his wife and my sister. They were my travel entourage. If you have friends or family that can join you on your trip, it will make it that much more enjoyable for you and your gang. We did not rent a vehicle but instead took local taxis who were very helpful. Good luck in your travels and enjoy every minute of it
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In the 2 1/2 years since my diagnosis, I have lost the use of my hands and my arms. I have had minimal swallowing issues. But our dining out experiences have changed dramatically since I cannot feed myself. My wife has to sit on my right hand side, preferably with me sitting at the end of the table and her sitting to my right on the side. So booths are out of the question. It’s a slow process for us because my food has to be cut up and then fed to me. We usually take turns, I have a bite, she has a bite. So when we go out with friends or family we are always the last ones eating.
We’ve had some comments from other tables that we have overheard -“must be newlyweds”, “isn’t that cute”. We’ve been married for 40 years so we get a chuckle out of that later. We try to ignore it, but sometimes the looks can be a little bit uncomfortable.
But the bottom line is we don’t really care what others think, what’s important is that we can enjoy the company of our friends or family while we can.
Keep smiling, do what you were able to do and enjoy yourself while doing it.