Kathy replied to the topic First Symptoms in the forum Living With ALS 2 months ago
My symptoms started as twitching in my left leg (fall 2020) and then slurred speech (spring 2021). I was an ICU nurse so I knew right away it was ALS. Finally went to PCP that September and a neurologist in November. She was gutless and wouldn’t say so I engaged a second opinion, who was honest and caring to speak truth. I use a brace on my left l…[Read more]
Kathy replied to the topic The love of my life ( Kenneth E Steadham) in the forum In Loving Memory 3 months, 3 weeks ago
I am so sorry to hear of your loss. And I am sorry you had to experience his struggle. This is a nasty disease with a very difficult path. I pray Gods peace to you and your family!
Kathy replied to the topic Here I Go Again in the forum Research Topics 6 months, 3 weeks ago
I find it very defeating at the every 3 month appointments. The whole purpose is to measure my decline and I’m fully aware of my decline. I also feel like there’s a certain path and they try to push you into things. I really like the Palliative Care doctor but I had to really be firm when refusing an antidepressant. The respiratory therapist push…[Read more]
Kathy became a registered member 6 months, 3 weeks ago
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]