@kennabaum
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McKenna Baum and
Danielle Uskovic are now friends 1 year, 9 months ago -
McKenna Baum replied to the topic HEALY Platform Trial in the forum Research Topics 1 year, 9 months ago
Thank you so much for all of the insight. I greatly appreciate it.
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McKenna Baum replied to the topic CHAMPION ALS Trial in the forum Research Topics 1 year, 9 months ago
Thank you so much for all of the helpful information everyone!
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McKenna Baum started the topic CHAMPION ALS Trial in the forum Research Topics 1 year, 9 months ago
Greetings everyone. My name is McKenna and my father has recently been diagnosed with ALS at age 50. His amazing team of doctors has referred us to two different trials, one being the CHAMPION ALS trial. As a family, we feel sort of lost of which to pick. Any opinions or guidance would be greatly appreciated. Here is the link to the trial…[Read more]
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McKenna Baum replied to the topic HEALY Platform Trial in the forum Research Topics 1 year, 9 months ago
Here is the link to the trial: https://clinicaltrials.gov/ct2/show/NCT04297683
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McKenna Baum started the topic HEALY Platform Trial in the forum Research Topics 1 year, 9 months ago
Greetings everyone. My name is McKenna and my father has recently been diagnosed with ALS at age 50. His amazing team of doctors has referred us to two different trials, one being the HEALY platform trial. As a family, we feel sort of lost of which to pick. Any opinions or guidance would be greatly appreciated.
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McKenna Baum replied to the topic Canada Approves New Patent Covering Ibudilast’s Use for ALS Treatment in the forum Research Topics 1 year, 9 months ago
What is the status of this drug trial in the US?
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McKenna Baum became a registered member 1 year, 10 months ago
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Hello McKenna,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns, or…[Read more]
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Hello McKenna, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]
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