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  • kiwiamazon

    Member
    August 14, 2025 at 4:28 pm in reply to: What are your thoughts about feeding tubes?

    Our pALS gets all of her medicines, liquids, and nutrition via feeding tube.
    Once you get used to it, its not difficult to use. Get training on how to use everything involved. Switch to a low profile g-tube as soon as possible. They last a LOT longer, and the feeding tube can be changed by the caregiver. Google search avanos 8140-18-3.5 to see the kit including the part that goes into the body (which is OTC – no doctor note needed). We also use mic-key bolus feed extension set (with enfit connector) and Dale ACE Connector with ENFit connection. The Dale Ace allows you to connect to the extension set once per feeding (allowing you to connect and disconnect the gravity bag and the syringes used to input liquids and ground pills). United Healthcare Advantage covers the cost of our bags, syringes, extension set, ACE connector and formula!