• Kim replied to the topic Living Longer with ALS in the forum Living With ALS 1 year ago

    I was diagnosed in June 2020 and started stem cell therapy in July 2020. I started with a 3 week treatment (1/week for stem cell injections over the three weeks), totally 120M cells. I am now receiving the ‘booster’ treatment of 40M cells. My plan is to get them 3/year. 20% are delivered IV and 80% IT, and is accompanied with vitamin and O2 therapy. I have no idea if it is working as I don’t know what my progression would be. At the moment, I started 1 1/2 years ago with left forefinger weakenss which has progressed to quite weak and the middle finger and thumb is also starting.

    I am going to continue b/c at the very least it is amazing for my overall health. My father has been getting regular stems for 6 years. He’s 84 and operates like he’s 65. Does this reflect how it will affect ALS? Who knows, but I’m willing to try!

    • Amanda replied 1 year ago

      Kim, where are you getting this treatment and does insurance cover any of it? I’d be interested in learning more about what you are doing.


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