@kqgoldhirsh
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Karen Goldhirsh replied to the topic Clinic Visit Routine in the forum Living With ALS 7 months, 1 week ago
My husband goes to the ALS Clinic at National Jewish Hospital every 2 – 3 months. He is there for 4 hours seeing neurologist, pulmonary doctor, speech therapist, PT, OT, RT and dietician. Some visits involved pulmonary tests. Have received great recommendations from pulmonary doctor (monitors bipap and cough assist data and recently recommended…[Read more]
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Karen Goldhirsh replied to the topic Share your tips for dealing with embarassing "bathroom" topics in the forum Living With ALS 7 months, 1 week ago
My husband suffered from constipation as well. His neurologist recommended movantik (for opioid constipation), 1 ducolax pill, 2 senna tablets and 1 capful of miralox in water for the morning and at night 2 senna, and 2 stool softners. This change has resulted in daily bowel movements where before it was 4-6 days with no bowel movement.
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Karen Goldhirsh replied to the topic Bathing in the forum A Forum for ALS Caregivers 1 year, 8 months ago
Thank you for your replies photos would be very helpful. Currently my husband’s weakness is in arms and hands none in legs at this time but I want to be prepared and make modifications once.
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Karen Goldhirsh started the topic Bathing in the forum A Forum for ALS Caregivers 1 year, 8 months ago
My husband diagnosed 2 years ago with ALS. We are looking for a home more accessible for bathing. Though not wheelchair bound now we are wondering if using a transfer Mobility chair for commode/tub/shower a good idea. Which is better a roll in or transfer shower or a bathtub? Has anyone installed a SafeStep tub or shower?
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Karen Goldhirsh replied to the topic Have you traveled soon after your diagnosis? in the forum Living With ALS 1 year, 9 months ago
My husband who was diagnosed 2 years ago have traveled several times. We drove to Denver, CO to visit my daughter and son-in-law staying one night in a motel in Cedar City, Utah. Check out any hotel/motel for their cleaning process. A motel is nice since it is outside entry to your room versus having to go through a lobby.I still went in the ro…[Read more]
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Karen Goldhirsh became a registered member 1 year, 9 months ago
Hello James,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
Hello Karen, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]