• Kevin Schaefer started the topic ALS Awareness Month Spotlight: Susan Gray in the forum ALS Awareness Month 2 years, 4 months ago

    Hey everyone! Hope you all had a safe and relaxing holiday weekend.

    We’re nearing the end of ALS awareness month, but we have a couple more member spotlights here. Thanks again to everyone who has shared stories!

    This is Susan Gray’s story:

    Contributed by Susan Gray

    “My name is Susan, and I’d never had any health issues in my 72 years until ALS struck. I first noticed my left foot slapping when I walked in January 2019. Life and travels got in the way, and it wasn’t until August that testing began (X-Ray, MRI, and eventually EMG) and subsequently ended with “the diagnosis” in November 2019.
    Presently, having to stay at home due to COVID-19 is having more of an impact on our life than the ALS. We miss getting together with friends and traveling in our little camping trailer. I wish more people understood that when “life gets back to normal,” those of us who have ALS won’t get to experience that new normal. For us, that new normal came the day we heard “I’m sorry. You have ALS.” However, let me add what other pALS have so aptly said “I accept the diagnosis but not the prognosis.” I may walk a little slower than before, but intend on being as active as possible for as long as possible. #WhatALSistome”

    • Susan,
      Thank you so much for sharing your information. Your outlook and optimism are inspiring and I am so happy you are part of the forum.

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