@lalennon
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Linda Lennon replied to the topic Stem Cell therapy for ALS in the forum Using our Forums 1 month ago
Mayo clinic is offering one but you need to travel to the Minnesota location
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Linda Lennon replied to the topic SUPPLEMENTS TO SLOW ALS PROGRESSION in the forum Diagnosis Information and General Questions 3 months, 3 weeks ago
In addition to some of the supplements mentioned by others I’m using red light therapy my research indicated it helps mitochondria the cells power house, not sure if its helping.
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Linda Lennon posted a new activity comment 3 months, 3 weeks ago
Thanks, I do toning exercises and stretches but when you get up at night and first thing in morning its so difficult to walk to rest room. I guess I just have to struggle thur these times. I would be glad to know the ones you do I’m always open to add more and learn other options.
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Linda Lennon posted an update 3 months, 3 weeks ago
I’m having alot of difficulty with mobility and leg stiffness does anyone have suggestions that might help?
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Hi Linda, I have found that range of motion movements and gentle stretching helped me keep my legs from feeling stiff. And I am able to keep the muscle tone as well. On days when I miss doing my ROM sessions, I end up feeling stiffer and move with less ease.
I’ve written a lot in my blog about these types of gentle movements. Let me know if you…[Read more]
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Thanks, I do toning exercises and stretches but when you get up at night and first thing in morning its so difficult to walk to rest room. I guess I just have to struggle thur these times. I would be glad to know the ones you do I’m always open to add more and learn other options.
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I hear ya! I am so stiff in the AM. I began with a 5 min. stretch while lying in bed (knee pulls, leg stretch, body twists, rolling over, etc) over 11 years this routine has morphed into a full 30-min. When I finally stand and walk to the bathroom, I feel more coordinated, relaxed and… if the rest of the day falls apart, at least I’ve done some…[Read more]
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Oh, and I don’t get up in the middle of the night. Too much risk of falling. Right away during my 1st year of ALS, I “retrained” my bladder. It’s a process of drinking adequate liquids during the day, but towards evening reduce liquids. I don’t drink anything after 7PM. It took about a week to do, but I’ve been sleeping a solid 9 hours for 11…[Read more]
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Linda Lennon became a registered member 3 months, 3 weeks ago
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Hello Linda,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Hello Linda, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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I hear ya! I am so stiff in the AM. I began with a 5 min. stretch while lying in bed (knee pulls, leg stretch, body twists, rolling over, etc) over 11 years this routine has morphed into a full 30-min. When I finally stand and walk to the bathroom, I feel more coordinated, relaxed and… if the rest of the day falls apart, at least I’ve done some…[Read more]
Oh, and I don’t get up in the middle of the night. Too much risk of falling. Right away during my 1st year of ALS, I “retrained” my bladder. It’s a process of drinking adequate liquids during the day, but towards evening reduce liquids. I don’t drink anything after 7PM. It took about a week to do, but I’ve been sleeping a solid 9 hours for 11…[Read more]