ALS News Today Forums | Laura | Activity

Laura replied to the discussion Welcome to the Slow Progression Forum discussion page in the forum People with slow ALS progression

Sat, 29 Mar 2025 12:32:03 -0500

Reply to Welcome to the Slow Progression Forum discussion page

Hi my name is Laura (age 61) was born in NJ. Moved to north Florida 8 years married had 3 children reside now in Charlotte, NC 29 years. It started with right foot drop March 2022. )(age 58). Was diagnosed local neurologist September 2022 (after X-rays, bloodwork, EMGs, PT etc for a year) then did a second opinion at Mayo Clinic, Jax Florida…

Laura replied to the discussion Is non-familial ALS a genetic disease? in the forum Diagnosis Information and General Questions

Mon, 19 Aug 2024 21:32:33 -0500

Reply to Is non-familial ALS a genetic disease?

Hi Peter

Last I was told is that it was a possible factor I am seeing neurologist tomorrow at Mayo Clinic could ask again?

Laura replied to the discussion Chelation Therapy? in the forum Living With ALS

Wed, 26 Jun 2024 13:09:01 -0500

Reply to Chelation Therapy?

Hi Peter,

I also have the repeat ATXN2 gene. My diagnosis is “slow ALS” mostly right leg at this point no history of smoking except second hand smoke have identical twin sister but she has had RA since she was 20. We both hit 60 this year I started foot drop age 58. I’m in a clinical trial through Mayo Clinic Jacksonville FL IbudilAst.

Hope you…

Laura posted a new activity comment

Wed, 26 Jun 2024 12:48:03 -0500

Hi ladies!

I was diagnosed in Sept 2023 but showed foot drop a year before that. And now that I look back had signs of cramping at night probably a year before foot drop. I walked 2-4 miles a day was active and taught preschool ages 4. Thought I hurt my back but after several EMGs, MRIs, finally went to neurologist in Charlotte, NC since right…

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