@lesandjohngaf4
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Leslie Gafford replied to the topic What do caregivers need? in the forum A Forum for ALS Caregivers 3 years, 6 months ago
Thank you Dagmar! I am interested in reading as much as I can and figuring out the best ways to do the right things for John. I feel like once we have a confirmation from Mayo in Jacksonville (next week), and John can quit thinking he doesn’t have it ( or if maybe he DOESN’T have ALS), that we can move forward to finding out the best avenues t…[Read more]
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Leslie Gafford replied to the topic What do caregivers need? in the forum A Forum for ALS Caregivers 3 years, 6 months ago
I can relate to the “time-out” concept, and the dilemma of wanting to be there for my husband, but wishing he was still busy with work and pre-occupied with projects so that every little thing I say or do doesn’t require a consult and communication…how terrible of me! Also, I noticed just days after his diagnosis, that in certain circles, my…[Read more]
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Leslie Gafford posted a new activity comment 3 years, 6 months ago
Thank you.
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Leslie Gafford changed their profile picture 3 years, 6 months ago
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Leslie Gafford posted an update 3 years, 6 months ago
We are just days away from our second opinion at Mayo in Jacksonville, and I am overwhelmed by the family members who are trying to second guess the diagnosis of the neurologists. Lingering in my mind is the fact that after a camping trip in Maryland in April of 2015, with a tick found on both myself and my husband but no real knowledge of Lyme…[Read more]
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Leslie Gafford became a registered member 3 years, 6 months ago
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Hello Leslie, my name is Dagmar. I’m one of the forum co-moderators and wanted to welcome you and thank you for joining our forum! We hope you will take the time to go through all the open conversations that are in progress and feel free to join in. Also, if you don’t see existing topics addressing questions that are important to you, please pos…[Read more]
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Thank you.
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Hello Leslie, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. We are glad you joined the forum. I hope you will look around at the topics and ongoing discussions and join in. If you have any questions or ideas for topics please be sure to post them. If you have any suggestions on how to improve the forum please let us know! A…[Read more]
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Leslie, you are so right about caregivers needing care. Dagmar has some great insight and advice. Please keep us posted on how things are going. When I was helping to take care of my father, the ALS Association was wonderful. .