ALS News Today Forums | Lorri Cavaliere | Activity https://alsnewstoday.com/forums/members/lorricav/activity/ Activity feed for Lorri Cavaliere. Thu, 09 Apr 2026 15:27:16 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 cd990cba4daffd99f987fcffcd5a634a Lorri Cavaliere replied to the discussion In Loving Memory of my twin who last her fight with ALS in 2020. in the forum In Loving Memory https://alsnewstoday.com/forums/forums/topic/in-loving-memory-of-my-twin-who-last-her-fight-with-als-in-2020/#post-21030 Tue, 16 Nov 2021 20:29:02 -0600 Reply to In Loving Memory of my twin who last her fight with ALS in 2020.

This is such a beautiful tribute to and celebration of your sister’s life.  No doubt, your twin is with you every moment of every day. 💕

]]> df4bb7cdc1f8c81ffe60a96c5546d539 Lorri Cavaliere replied to the discussion Urgently referred to ALS clinic. Anyone here have respiratory and bulbar onset? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/urgently-referred-to-als-clinic-anyone-here-have-respiratory-and-bulbar-onset/#post-19816 Tue, 06 Jul 2021 20:20:11 -0500 Reply to Urgently referred to ALS clinic. Anyone here have respiratory and bulbar onset?

Hi Anne, please see a Lyme Literate doctor. I am aware of instances when the diagnosis was wrong. Happened actually to a physician. It can’t hurt. I’m sorry that ALS is 100% fatal. My 29 year old was diagnosed with Bulbar-onset last July. We are going to explore that route. As slim a chance as it is, anything is better than nothing. Message me… Read more

]]> ae84678e1813254c79cb3137b1e67222 Lorri Cavaliere posted a new activity comment https://alsnewstoday.com/forums/activity/p/10454/#acomment-10455 Thu, 25 Feb 2021 22:28:31 -0600 …a right to live…

In reply to - Lorri Cavaliere posted an update This is ridiculous! It’s been over 150 years since the diagnosis of this horrific disease. NurOwn showed promise in some people. Give everyone the chance to live…a carrot is […] ]]> 2d9044dfdd1861b0c5f57458ef063ca0 Lorri Cavaliere posted an update: This is ridiculous! It’s been over 150 years since the […] https://alsnewstoday.com/forums/activity/p/10454/ Thu, 25 Feb 2021 22:27:21 -0600 This is ridiculous! It’s been over 150 years since the diagnosis of this horrific disease. NurOwn showed promise in some people. Give everyone the chance to live…a carrot is being dangled and it is simply cruel and inhumane. My 29 year old daughter was diagnosed with ALS in August of 2020. The fact that we have to beg to give our children,… Read more

]]> 2 9f39290701d7efb6d184681202889571 Lorri Cavaliere became a registered member https://alsnewstoday.com/forums/activity/p/7935/ Wed, 23 Sep 2020 01:01:52 -0500 2