@lpilarcik
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Lisa replied to the topic Have you changed your diet since being diagnosed with ALS? in the forum Living With ALS 3 days, 6 hours ago
I have been very “lucky” up to this point that I do not have any bulbar symptoms and my swallowing has not been affected….yet. I have not suffered any weight loss and have in fact gained weight since my diagnosis just over a year ago. So I eat whatever I want…whenever I want. It’s my way of sticking it to this dreadful disease before it c…[Read more]
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Lisa's profile was updated 3 days, 7 hours ago
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Lisa replied to the topic Emergency Notification Device in the forum Mobility Aides, Assistive Technology and Medical Equipment 1 month ago
I have the same as Susan….the newer Apple Watches have fall detection. I have the one that has to stay within bluetooth range of my cell phone. There is a more expensive model that is basically it’s own cell phone. It’s given my husband peace of mind since I can still walk short distances and am home alone throughout the day.
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Lisa became a registered member 11 months, 1 week ago
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Hello Lisa,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Hello Lisa, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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