@lslaird
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Linda replied to the topic Caregivers Check in in the forum A Forum for ALS Caregivers 9 months, 1 week ago
My sister was diagnosed last January and is progressing rapidly. She is completely non-ambulatory. I’m with her from Sunday to Thursday afternoon. When I leave, we have caregivers from Home Instead in Indianapolis step in. I spend my “off” days catching up with my hubby and just resting. I have to admit to being exhausted and suffer with bout…[Read more]
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Linda replied to the topic Asking for Support in the forum Living With ALS 9 months, 2 weeks ago
My sister had developed an intense itch in the last few weeks. Is this a normal occurrence with ALS? She was diagnosed 1/3/2020. Her deterioration has been rapid.
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Linda became a registered member 10 months, 3 weeks ago
Hello Linda,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
Hello Linda, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]