@marcusnilco
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Mark B Nilsson posted an update 4 months, 3 weeks ago
@amanda-sifford I am hoping for a gene cure coming soon. It will save Medicare a lot of money not paying for these drugs that only keep people going for 3-9 more months.
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Mark B Nilsson posted an update 4 months, 3 weeks ago
@ajlarriveegmail-com Thank you for the message
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Mark B Nilsson posted a new activity comment 4 months, 3 weeks ago
I would like to see a cure as I’m sure everyone does and I’m happy to see all the companies working on a gene correction to cure the ALS.
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Mark, gene correction just may be the only way we’ll see an end to ALS.
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Mark B Nilsson posted a new activity comment 4 months, 3 weeks ago
I’ve got the familial C9 gene, and it started in the bulbar muscle. I’ve had it for 1 3/4 years and it’s kind of aggressive. I’m a patient with Barrows and Ilike to do every test they have so they keep me busy.
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Mark B Nilsson replied to the topic Welcome to the Club in the forum Living With ALS 4 months, 4 weeks ago
I have the inherited C9 gene and hoping they come out fast with the Crispr-Cas9 therapy. it might cure any gene caused disease. It would be nice to see it in action.
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Mark B Nilsson became a registered member 5 months ago
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Hello Mark,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]
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I’ve got the familial C9 gene, and it started in the bulbar muscle. I’ve had it for 1 3/4 years and it’s kind of aggressive. I’m a patient with Barrows and Ilike to do every test they have so they keep me busy.
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Hello Mark,
Welcome to the forum! I am one of the forum moderators as well as a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by…[Read more]
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I would like to see a cure as I’m sure everyone does and I’m happy to see all the companies working on a gene correction to cure the ALS.
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Mark, gene correction just may be the only way we’ll see an end to ALS.
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