• Marianne Soelayman became a registered member 3 years, 1 month ago

    • Hello Marianne, my name is Dagmar. I’m one of the forum co-moderators and also a person living with ALS. I welcome you and thank you for joining our forum! We hope you will take the time to go through all the open conversations that are in progress and feel free to join in. The easiest way to see what is current is to click “Activity” on the top menu bar. Then scroll down.

      Also, if you don’t see existing topics addressing questions that are important to you, please post the question yourself or message me and I will start the discussion for you. Need help? Check out the tips in the forum: “Using Our Forums.”

      If you have any questions or concerns or even suggestions, just message either Amanda (also a forum moderator) or me, and, we will do our best to help you. Again, thank you for joining our forum – – I look forward to hearing from you!

      • Thank you Dagmar for the kind message. My husband is the one with ALS. It has been 6 years now. I will definitely message you or Amanda if I have any questions.
        Thanks again! 🙂

    • Hello Marianne and welcome to the ALS forum. Thank you for joining us!

      I read your profile and I’m sorry to hear that you have a family member who

      has ALS. My father also had ALS. It is very difficult for both the pALS and their loved ones.

      Please feel free to seek information and support from our members. Have a look at the discussions and topics. You are welcomed to respond to topics, start discussions, ask questions and respond to other members. Our goal is to keep the topics relevant and timely and to create a supportive environment for all of our members.

      If you have any questions please feel free to message me or Dagmar. Dagmar is amazing and extremely knowledgeable.

      I look forward to chatting with you.

      Amanda

      • Thank you! Dagmar has already left me a message. It is my husband who has ALS. He’s been living with it for more than 6 years now. We also have 2 toddlers at home so our lives have been pretty busy.
        I will of course let you or Dagmar know if I have any questions. Thanks again!

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