@mell
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Mel Levine replied to the topic Passing away and respiratory in the forum Diagnosis Information and General Questions 2 months, 1 week ago
Shannon, so sorry to hear about your husband.
Everyone is different but yes, respiratory failure is what frequently happens.
My wife passed in October after 3 years with bulbar onset. During her last 3 months though he food intake, via a tube, remained constant she became unable to walk, breathing became labored and she too spent most of her…[Read more]
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Mel Levine replied to the topic Has your State made the COVID-19 Vaccine available to pALS and caregivers? in the forum Coronavirus (COVID-19) and ALS 1 year, 7 months ago
We’re in Ga and no special handling of pALS (my wife). We got our 1st shot (Moderna) 3 weeks ago by getting lucky on the sign-up. Emory is our ALS clinic and said they are using what they have for staff. Our primary care doctors don’t have any vaccine and basically sent an email saying ‘don’t call us, we’ll call you’. We live in Fulton County t…[Read more]
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Mel Levine replied to the topic Tips for adjusting to living with a PEG (feeding tube) in the forum Living With ALS 1 year, 8 months ago
My wife had the PEG inserted in April after she couldn’t take in enough food and was losing weight. It was an emotional experience but we adjusted. She started with Jevity 1.5 with a gravity bag but it was taking 90-120 minutes per meal. After a few months we switched to Kate Farms 1.0 and adjusted the amount to provide the same calorie count a…[Read more]
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Mel Levine became a registered member 2 years, 10 months ago
Hello Mel, Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns or even…[Read more]
Hello Mel, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let us k…[Read more]