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Mimi

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@mimi20

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    Mimi replied to the topic Respiratory onset? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    this is scary because even when the EMGs are normal, it is possible that later the diagnosis of ALS will still be given at the end.
    I wonder if EMGs are normal or if doctors can’t read them well?
    This disease is really cruel, it kills us but first makes us live a nightmare even to be diagnosed.

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    Fernando Santana da Silva and Profile picture of MimiMimi are now friends 2 years ago

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      Kiki replied 1 year, 6 months ago

      Hello Mimi, how are you? I have similar symptoms and was wondering if you got diagnosed with ALS or if they found another cause ? I remember that you said you were in the middle of diagnosis and not sure if it was ALS. Maybe it is sth anxiety related? I hope that you have sth treatable!!
      Best wishes Kiki

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    Mimi replied to the topic Respiratory onset? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years ago

    Hi,

    I m so sorry to disturb you. I want you to be sur I didnt write for pleasure.
    please excuse me. I feel in a desperate situation. I am Swiss and my English is not very good. But I will try to explain my situation to you. I think you are in a good position to know how hard it is to be sick and unanswered.

    I m a 26yo (soon 27) swiss girl. I m…[Read more]

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    Mimi became a registered member 2 years ago

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      Dagmar Munn replied 2 years ago

      Hello Mimi,

      Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns, or even…[Read more]

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