@mimi20
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Mimi replied to the topic Respiratory onset? in the forum Diagnosis Information and General Questions 1 year, 11 months ago
this is scary because even when the EMGs are normal, it is possible that later the diagnosis of ALS will still be given at the end.
I wonder if EMGs are normal or if doctors can’t read them well?
This disease is really cruel, it kills us but first makes us live a nightmare even to be diagnosed. -
Fernando Santana da Silva and
Mimi are now friends 2 years ago
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Mimi replied to the topic Respiratory onset? in the forum Diagnosis Information and General Questions 2 years ago
Hi,
I m so sorry to disturb you. I want you to be sur I didnt write for pleasure.
please excuse me. I feel in a desperate situation. I am Swiss and my English is not very good. But I will try to explain my situation to you. I think you are in a good position to know how hard it is to be sick and unanswered.I m a 26yo (soon 27) swiss girl. I m…[Read more]
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Mimi became a registered member 2 years ago
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Hello Mimi,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns, or even…[Read more]
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Hello Mimi, how are you? I have similar symptoms and was wondering if you got diagnosed with ALS or if they found another cause ? I remember that you said you were in the middle of diagnosis and not sure if it was ALS. Maybe it is sth anxiety related? I hope that you have sth treatable!!
Best wishes Kiki