@monicabfine
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John Fine replied to the topic Ankle-Foot Orthosis (AFOs): Your Questions, Tips and Shared Resources in the forum Living With ALS 2 years, 4 months ago
Thanks, Carolyn! I found some pictures online and we will plan to ask about this since we have our ALS appointment this week. I don’t think forearm crutches would work since one shoulder is quite weak. Do you have a regular walker or an upright walker? We tried to get an upright walker but insurance denied it. Thanks for sharing your ideas!
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John Fine replied to the topic Ankle-Foot Orthosis (AFOs): Your Questions, Tips and Shared Resources in the forum Living With ALS 2 years, 4 months ago
<p class=”p1″>Looking for suggestions of something between an AFO brace with a cane and having to use a walker/wheelchair. Does anyone know of a brace that has more support for the knee instead of just the ankle and foot drop? Thanks so much. — looking for recommendations.</p>
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John Fine posted a new activity comment 2 years, 4 months ago
Thanks for the welcome, Dagmar. I know you have posted about AFO braces. Do you know of any brace that has more support of the knee? I have had my AFO for about 2 years since foot drop is a big problem. I have basically complete atrophy of my lower right leg and now my knee keeps giving out. I am not quite ready to go to a walker. Have you heard…[Read more]
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John Fine became a registered member 2 years, 4 months ago
Hello John,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
Thanks for the welcome, Dagmar. I know you have posted about AFO braces. Do you know of any brace that has more support of the knee? I have had my AFO for about 2 years since foot drop is a big problem. I have basically complete atrophy of my lower right leg and now my knee keeps giving out. I am not quite ready to go to a walker. Have you heard…[Read more]
Hello John, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]