@nancydevillers
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Nancy deVillers replied to the topic Favorite ALS organization in the forum Living With ALS 1 year, 6 months ago
Compassionate Care. They lend you wheelchairs and other assistive devices. Their counselors are awesome!
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Nancy deVillers replied to the topic Processing your ALS Diagnoses in the forum Living With ALS 1 year, 6 months ago
When I first had symptoms my doctor said ” Well you haven’t fallen so so it’s probably not MS or ALS”. So the next week I unexpectedly fell in the yard. I searched the internet for every possible disease or condition and ALS always fit the symptoms. When I was finally able to see a neurologist and they tested my legs and I was twitching all over…[Read more]
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Nancy deVillers replied to the topic Asking for Support in the forum Living With ALS 1 year, 7 months ago
As to the question of how to let family and friends know about my diagnosis- I chose a different way. I do not want anyone to feel sorry or uncomfortable around me. Because of Covid I haven’t been able to see old work friends ( I’m retired) and relatives, On Halloween I posted on Facebook that I had some scary news. ” I’m not a man, never been…[Read more]
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Nancy deVillers became a registered member 1 year, 10 months ago
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Hello Nancy,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Hello Nancy, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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Nancy, I just love your post and I think I would love having you for a neighbor! I think you nailed some important facts right on the head. ALS may take a lot of things as it progresses; however, pALS are still the same person they were before diagnoses. Please continue to post and respond to topics. Your humor is welcomed and may help others in…[Read more]