• I got my power chair through Medicare. They collaborated with OT folks at  Dartmouth Hitchcock Medical Center. The OT used my current status to predict future degradation. This was very critical to the process. Otherwise, my chair would’ve  fallen short of full functionality. I spent $2000 out-of-pocket for the elevate function. It is unfathomable that this wouldn’t have been covered. But these are the  vagaries in the system.

    In total, it took 20 weeks from sizing to delivery. The approval process took most of that cycle. The ALS foundation of Northern New England lent me a power chair while mine was in process. This was a godsend.

    It is important to understand your rate of decline and get assistive devices in process before they are actually needed. The challenge is finding a sympathetic and savvy provider who can maneuver through the approval process. They need to build a compelling case based on future requirements. The system is more interested in the “here and now”.

    The chair is a miracle. I wouldn’t want to contemplate life without it.

    • Richard,
      It is wonderful that you were able to borrow a chair from the ALS Foundation of Northern New England. I think you advice and information will be helpful for other pALS. Thank you for sharing. It’s important to share experiences and how to get through the process more quickly.
      Amanda

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