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Tim Burr

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@oolagahaol-com

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    Tim Burr replied to the topic Oh my COVID vaccine in the forum Coronavirus (COVID-19) and ALS 1 year, 3 months ago

    We had both shots with NO reactions. We have asked our friends of all ages and health status about reactions, and there seems to be no common response. Our daughter-in-law had a reaction after the second shot, but our son had virtually nothing.

    Tim

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    Tim Burr replied to the topic Respiratory onset? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 8 months ago

    Hi Leslie,

    Thanks for passing on this information. I will see if I can get the Atrovent. It certainly would be a lot better than all the soggy tissues in newspaper bags.

    Tim Burr

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    Tim Burr replied to the topic Rilozole experience? in the forum A​ ​Forum​ ​for​ ​ALS ​Caregivers​ 1 year, 9 months ago

    I can’t get up in time to take the first one an hour before breakfast, so I take it two hours after (which is more than an hour before lunch). Then I take the second one when going to bed, which is more than two hours after supper. Seems to work for me.

    Tim Burr

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    Tim Burr replied to the topic Respiratory onset? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years ago

    Hi all,

    I started with difficulty lifting things in front of me. Never a problem before. Had some PT, but one of exercises called for me to lie on my back on the equivalent of a pool noodle. I realized that my chest was not lifting when I inhaled. About two months later in September 2019, I walked to work because it was raining (I have been…[Read more]

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    Tim Burr posted a new activity comment 2 years ago

    Thanks. Do you have any exercises that are specifically aimed at helping with breathing?
    Tim

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    Tim Burr became a registered member 2 years ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 2 years ago

      Hello Tim,

      Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns, or even…[Read more]

    • Profile picture of Tim Burr
      Tim Burr replied 2 years ago

      Thanks. Do you have any exercises that are specifically aimed at helping with breathing?
      Tim

    • Profile picture of Amanda
      Amanda replied 1 year, 11 months ago

      Hello Tim, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]

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