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I am a retired federal public information employee. After my retirement, I went to work for a rental agency on Capitol Hill in Washington, DC and worked there for 23 years. I was the oldest employee, but also the office techie. About 18 months ago, I began to have some difficulty in carrying things in front of me, got some PT which made me aware of some breathing difficulties, and noticed that I was losing weight. After visiting multiple doctors and taking a wide variety of tests, I was finally diagnosed with ALS at Johns Hopkins in January 2020. My initial and primary issue is difficulty breathing. I use a BiPAP for sleeping and for some periods during the day. I am still able to walk with a cane for relatively short distances, but my wife is taking on more and more of my support for carrying things.
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January 30, 2020