Tim Burr



Year of Birth





Washington, DC



Short Bio

I am a retired federal public information employee. After my retirement, I went to work for a rental agency on Capitol Hill in Washington, DC and worked there for 23 years. I was the oldest employee, but also the office techie. About 18 months ago, I began to have some difficulty in carrying things in front of me, got some PT which made me aware of some breathing difficulties, and noticed that I was losing weight. After visiting multiple doctors and taking a wide variety of tests, I was finally diagnosed with ALS at Johns Hopkins in January 2020. My initial and primary issue is difficulty breathing. I use a BiPAP for sleeping and for some periods during the day. I am still able to walk with a cane for relatively short distances, but my wife is taking on more and more of my support for carrying things.

How did you hear about us?

ALS Website

How long have you or the person that you are caring for had ALS?

January 30, 2020

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