Short Bio |
My husband was diagnosed on 2/19 with ALS with an appointment at INOVA in Fairfax. We have an appointment at Johns Hopkins on 3/10 for another opinion/option. He started with a pain/weakness in his right hand, now only 1 or 2 fingers work and muscle loss is extreme on that side. He’s still walking. He has some issues speaking/swallowing. We’re getting Riluzole, and working through Radicava. Getting the Riluzole prescription has been the most challenging thing so far!
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How long have you or the person that you are caring for had ALS? |
maybe 1 year
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