@psm978
-
Gwen McMartin replied to the topic Sam Shepard Book in the forum ALS In The Media 6 months, 1 week ago
This book looks interesting. I recommend “Learning to Fall” by Philip Simmons. A collection of essays by the author who had ALS focusing on life and death in general. He passed in 2002 the year it was published.
-
Gwen McMartin replied to the topic Would you seek out Albrioza treatment? in the forum Research Topics 6 months, 2 weeks ago
It seems that there is no reason to delay approving this drug/compound for pALS when there are few choices out there for effective treatment. Yes, I would definitely seek out Albrioza treatment when I am able. I am currently in the Courage ALS Reldesemtiv trial. We need as many options as we can get!
-
Gwen McMartin replied to the topic ALS in the Movies …and YOU could be a "star" in the forum ALS In The Media 11 months, 3 weeks ago
This is wonderful! The more exposure ALS & MND have in the world the better! Increasing awareness & then support for research is crucial.
-
Gwen McMartin replied to the topic Riluzole side effect in the forum Living With ALS 1 year, 2 months ago
Hi Dagmar, I am recently diagnosed (bout a month) and am new to the ALS News Today Forum. I have “limb onset”-in my legs, wearing AFO braces for foot drop, using a cane or walker depending on how much walking I am doing.
I’m still trying to get a handle on this disease and how it affects people so differently. Had my first “Clinic Team” appt l…[Read more]
-
Gwen McMartin became a registered member 1 year, 2 months ago
Hello Gwen,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
Hello Gwen,
I would like to personally welcome you to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with A…[Read more]