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Rachel Deboer

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@racheldeboer1

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    Rachel Deboer posted a new activity comment 1 year, 11 months ago

    Um thx u. I just got diagnosed 4 days ago. Going 4 2nd opinion but in my bones I feel I have this. Im in despair and feel suicidal sometimes. I have partners and a good support network..but i feel im losing my mind. Im 45 and lost. I literally am going in a downward spiral

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    Rachel Deboer became a registered member 1 year, 11 months ago

    • Profile picture of Amanda
      Amanda replied 1 year, 11 months ago

      Hello Rachel, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]

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        Rachel Deboer replied 1 year, 11 months ago

        Um thx u. I just got diagnosed 4 days ago. Going 4 2nd opinion but in my bones I feel I have this. Im in despair and feel suicidal sometimes. I have partners and a good support network..but i feel im losing my mind. Im 45 and lost. I literally am going in a downward spiral

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 1 year, 11 months ago

      Hello Rachel,

      Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]

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