Rebecca D. replied to the topic Relyvrio in the forum Diagnosis Information and General Questions 4 months ago
I started Relyvrio January 4th and stopped the 9th. I have a bladder condition (interstitial cystitis) that had been under control for years until Relyvrio. I knew taking it was a gamble, but wasn’t prepared for how quickly it triggered a debilitating flair of bladder pain.
Rebecca D. replied to the topic Relyvrio in the forum Diagnosis Information and General Questions 4 months, 3 weeks ago
After a bad experience with Tudca, I started Relyvrio yesterday with some trepidation. Tudca instantly started cramping & diarrhea, but so far I’m okay with the Relyvrio, despite not having a gallbladder. I also take Radicava & Riluzole. My liver enzymes are elevated due to Riluzole so it will be interesting to see what effect Relyvrio…[Read more]
Rebecca D. replied to the topic Have you had physical therapy sessions for your ALS? in the forum Living With ALS 11 months ago
I’ve been in PT for about a year. What started as strength training for my upper back & core evolved to a lower body focus after I complained to my therapist about tripping all of the time last August. Two neurologists and multiple EMGs & MRIs later, I was diagnosed with ALS on May 10th. My right foot drops and my leg is extremely weak. I’m still…[Read more]
Rebecca D. replied to the topic Learning to LIVE with ALS in the forum Living With ALS 11 months, 1 week ago
Richard – thank you so much for sharing this info. I was diagnosed May 10th and am just coming out of my diagnosis fog and trying to figure out next steps. Your lists and resources will help tremendously.
Rebecca D. became a registered member 1 year ago
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]