• Reggy became a registered member 2 years ago

    • Hello Reggy, and welcome to the ALS forum. I am Amanda, one of the co-moderators. My family has an extensive history of ALS. I’ve been volunteering for ALS research for nearly a decade. I have the SOD1 mutation, but I do not have ALS at this point. Our forum is made up of pALS, caregivers, and others with a connection to ALS. Please go through the ongoing discussions and topics. Feel free to respond, comment or post topics. If you need any assistance just reach out to myself or Dagmar! Again, welcome.

    • Hello Reggy, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let us know. We want to help in anyway we can.
      The ALS forum members are a mixed group of people who are all connected to ALS in some manner. A few like myself, have a hereditary predisposition (genetic mutation) to ALS, some volunteer for clinical trials, some are pALS or caregivers, and still others are involved in medical practice or research. The members are willing to share their experiences and information.
      You are welcomed to provide feedback or suggestions for the forum. We strive to cultivate a supportive environment for our members, and we value providing up to date and relevant information.
      Please let us know if you need any information or assistance.
      Amanda

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