@resnickk626
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Kathy Resnick replied to the topic All About: Neck, Hand and, Foot/Ankle Braces in the forum Mobility Aides, Assistive Technology and Medical Equipment 8 months, 3 weeks ago
Last year, I became the proud owner of an AFO for my right footdrop. Before going in for my fitting, I checked out blogs, ALS sites and googled AFO’s. There was not a lot of “good/helpful” information. This latest article by Your ALS Guide‘ with the videos would have answered my questions.
I am able to wear pants with semi cut boot legs and…[Read more]
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Kathy Resnick posted a new activity comment 9 months, 1 week ago
Dagmar,
If it helps or if you want, my private email is [email protected] -
Kathy Resnick posted a new activity comment 9 months, 1 week ago
Good afternoon GA time,
I have been working every day with the breathing regimen, I feel more positive and calmer knowing I am doing the best I can to take excellent care of what muscle and ability I have. I have also increased my stretching, stability and mini workouts during the day.
New question for you ….
before the question a little back…[Read more] -
Kathy Resnick posted a new activity comment 11 months, 1 week ago
Thanks for the welcome! I have noticed in reviewing past posts that you have talked about blowing bubbles into water. Was this to help with your diaphragm? The Polmunary technician gave me a visit to test breathing functions; first test was the predicted screening and I was at 95%. Both my husband and I were Rea;ll;y excited and pleased.…[Read more]
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Kathy Resnick became a registered member 11 months, 1 week ago
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Hello Kathy,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Thanks for the welcome! I have noticed in reviewing past posts that you have talked about blowing bubbles into water. Was this to help with your diaphragm? The Polmunary technician gave me a visit to test breathing functions; first test was the predicted screening and I was at 95%. Both my husband and I were Rea;ll;y excited and pleased.…[Read more]
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Hi Kathy, thanks for asking 🙂 Yes, I follow a breathing regimen (my own) that includes: diaphragm breathing whenever possible, slow deep diaphragm breathing 10x/day, blowing bubbles (exhaling strongly thru a tube submerged in water plus, good posture when sitting, and daily core exercises. whew!
I describe most of that here:…[Read more]
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Good afternoon GA time,
I have been working every day with the breathing regimen, I feel more positive and calmer knowing I am doing the best I can to take excellent care of what muscle and ability I have. I have also increased my stretching, stability and mini workouts during the day.
New question for you ….
before the question a little back…[Read more] -
Dagmar,
If it helps or if you want, my private email is [email protected]
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Hello Kathy, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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Hi Kathy, thanks for asking 🙂 Yes, I follow a breathing regimen (my own) that includes: diaphragm breathing whenever possible, slow deep diaphragm breathing 10x/day, blowing bubbles (exhaling strongly thru a tube submerged in water plus, good posture when sitting, and daily core exercises. whew!
I describe most of that here:…[Read more]
Good afternoon GA time,
I have been working every day with the breathing regimen, I feel more positive and calmer knowing I am doing the best I can to take excellent care of what muscle and ability I have. I have also increased my stretching, stability and mini workouts during the day.
New question for you ….
before the question a little back…[Read more]
Dagmar,
If it helps or if you want, my private email is [email protected]