@rhonda
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Rhonda Hill replied to the topic ALS and nurturing relationships in the forum ALS and Relationships 9 months, 3 weeks ago
Funny. First let me say I am caretaker for my X-husband. We were married 25 years, divorced 12 with very little contact during the 12 years. Our communication is poor. I have found having someone else around as much as possible is very helpful. He seems to use his words then instead of expecting me to just “know”. It has taken almost 2 years to…[Read more]
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Rhonda Hill replied to the topic In Loving Memory of my twin who last her fight with ALS in 2020. in the forum In Loving Memory 11 months, 1 week ago
Your love for your twin and beautiful memories are truly a treasure. It warms my heat that you can share them so eligantly. Thank you for sharing your sister with us.
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Rhonda Hill replied to the topic End of Life Topics in the forum Living With ALS 1 year, 1 month ago
( my first time to chime in on any subject ) Hello. I am my X husband’s care giver. He has been diagnosed with ALS for just over a year now. Any time I bring up a living will or healthcare …any end of life subject , he tells me , now is not a good time. Maybe as John mentioned, getting a none family member to talk him through this would be…[Read more]
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Rhonda Hill became a registered member 1 year, 1 month ago
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Hello Rhonda,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Hello Rhonda, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]
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Rhonda, I think your concerns are realistic. You are in a difficult position. After the year and a half living through a pandemic, well, I think we all need to give consideration to end of life wishes and procedures. ALS, Covid, accidents, (endless list) they all happen and sometimes the end is much sooner than we anticipate. Perhaps getting a…[Read more]