@rjspitler
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Ronald James Spitler replied to the topic Right to Try Act in the forum Diagnosis Information and General Questions 2 years, 6 months ago
Nurown now has orphan status ,but will not release the treatment , according to my neurologist . Please let me know when you find success . Thanx
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Ronald James Spitler replied to the topic Once bulbar symptoms occur…. in the forum Living With ALS 3 years ago
I’ve had ALS for nearly 3 years but was treated for Lyme until a year ago. My Bulbar started over 2 years ago and the team at Henry Ford Hospital in Detroit got right on it. First, a bi-pap machine assists breathing and saves energy…the best thing you can do. Nudexta got rid of the involuntary laugh/cry problrm. A speach therapist was great for…[Read more]
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Ronald James Spitler replied to the topic The impact of having ALS on a spouse in the forum ALS and Relationships 3 years, 1 month ago
I just lost about 10 lines of text when an errant finger bumped the wrong key so am shortening it. I’ve had ALS for nearly 3 years and am like an adolescent reverting to a baby. I’m 77 years old. I can’t help with anything and have limited abilities, including using a walker a bit. My wife is very supportive and does so much for me. I don’t know…[Read more]
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Ronald James Spitler replied to the topic Was your initial diagnosis correct? in the forum Diagnosis Information and General Questions 3 years, 3 months ago
IN SPRING OF 2017 I HAD A “COLD” FOR 3 WKS. WHEN IT ENDED I WAS WEAK ON LEFT SIDE AND HAD SLIGHT SLAP FOOT PLUS SLIGHT SPEECH ISSUE AND MUCH FATIGUE/WEAKNESS. SYMPTOMS SO MIXED WE THOUGHT IT WAS LYME SINCE IT MIMICS EVERYTHING. BLOOD TEST DIAGNOSED IN CA “CONFIRMED” IT. LYME SPECIALIST STARTED ME ON HEAVY ANTIBIOTICS, ETC AND AFTER A YEAR…[Read more]
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Ronald James Spitler replied to the topic Do you experience muscle twitching? in the forum Living With ALS 3 years, 5 months ago
I have found relief from muscle twitching and spasms in my legs with twice daily application of CBD/THC cream. Using 25% each in essential oils.
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Ronald James Spitler became a registered member 3 years, 5 months ago
Hello Ronald, Welcome to the forum! I am one of the forum moderators, as well as a person living with ALS; I was diagnosed in 2010. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. The easiest way to see what is current is to click…[Read more]
Hello Ronald, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let us k…[Read more]