Base

Name

Rob

Last Name

Karp

Nickname

Robbie

Year of Birth

06/27/1951

Gender

Male

Location

Seattle area

Relationship

Patient

Short Bio

I’m a retired wholesale nursery owner who used to sing classical and sacred music. I was diagnosed with bulbar onset in 11-22. Luckily I have slow progression ALS. I’m losing speech function but am able to do everything else with limited adaptation. I go to the University of Washington clinic

How did you hear about us?

ALS News Today Newsletter

How long have you or the person that you are caring for had ALS?

Diagnosed in November of ‘22

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