@robhdds
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Robert Harrigan replied to the topic Stem Cell therapy for ALS in the forum Using our Forums 1 year, 8 months ago
Mayo has a clinical trial going where they inject stem cells into the spinal fluid. My wife is on the list to be included in this trial. Hope she is enrolled soon. They are not showing any results on the clinical trials.gov site yet.
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Robert Harrigan started the topic Pain management and ALS in the forum A Forum for ALS Caregivers 1 year, 11 months ago
My wife Lisa was diagnosed with ALS 2 months ago. She has constant pain. We have ben using a lotion with CBD and she has ben taking CBD orally with minor relief. She takes 800mg Ibuprophen 2x/day a low dose of Baclofen. Wondering if anyone has had success vaping CBD/THC marijuana ? She cannot use the opioid derivatives. Thanks much for any…[Read more]
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Robert Harrigan replied to the topic Speak up and let us know what topics are useful! in the forum Using our Forums 1 year, 11 months ago
I saw Cindy’s post from 4/29 on her horrible pain. My wife Lisa ,diagnosed 2 months ago , also has terrible pain. I am wondering if anyone has had any success with CBD/THC lotions or vaping marijuana for their pain relief ? Thanks much Rob H.
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Robert Harrigan posted a new activity comment 1 year, 11 months ago
Thanks much for your quick response Dagmar. Will be checking for any discussion on dealing with pain associated with ALS. My wife is really suffering. Take care.
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Robert Harrigan became a registered member 1 year, 11 months ago
Hello Robert,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
Thanks much for your quick response Dagmar. Will be checking for any discussion on dealing with pain associated with ALS. My wife is really suffering. Take care.
Hello Robert, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]