| Short Bio |
Symptoms started in 2022, maybe even 2021. Diagnosed incorrectly several time, dropfoot due to peroneal nerve- “it’ll get better, don’t worry.” Then peripheral neuropathy, then “maybe it’s an autoimmune disease” and had 12 IVIG treatments. Then the 4th or 5th neurologist diagnosed the big one – MND, likely als.  Very weak legs, and now starting to get weak thumb and forefinger. Arms tire too. No bulbar, thank God. Dr said I’m slow progression, and i’m still hoping for a miracle. On Riluzole (June 2024) and Radicava (Sept 2024.)
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| How long have you or the person that you are caring for had ALS? |
2-3 years
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