@sara
-
Sara replied to the topic Investigational (experimental) therapies in the forum Research Topics 1 year, 10 months ago
Hi Dagmar, thank you for your help in framing my questions.
1. TUDCA: yes, there is some data that PALS lose function more slowly with this supplement vs. PALS taking placebo. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5024041/ It is available OTC. I would suspect that some PALS on this forum are taking this, and I’m hoping to get a…[Read more]
-
Sara replied to the topic Investigational (experimental) therapies in the forum Research Topics 1 year, 10 months ago
Is anyone taking oral methylcobalamin? It seems that the research is really only around IM delivery. Is there any utility to oral methylcobalamin? And if so, what dose?
Also, as to TUDCA, which seems quite interesting, can anyone recommend a brand? I feel quite in the wilderness when it comes to supplements and I do worry about the…[Read more]
-
Sara became a registered member 1 year, 10 months ago
Hello Sara, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]