@simeon
-
Simeon replied to the topic Use of Off label treatments. in the forum Research Topics 1 year, 11 months ago
Hi Danielle – I provided the research papers to our GP. It also helped that they were pre-existing drugs with long history of safety and well understood, for example triumeq and tecfidera.
-
Simeon replied to the topic Use of Off label treatments. in the forum Research Topics 1 year, 12 months ago
Hi Danielle,
I’m not sure that is correct in Australia. Any GP can prescribe off-label. The thing you can’t do is get the cheaper prices via the PBS.
Thanks
Simeon
-
Simeon started the topic Berberine and TDP-43 in the forum Research Topics 2 years ago
Hi All,
First time post in this forum – please let me know if I am posting in the wrong section.
So my query is a two part questions.
I’ve been coming across a lot of research involving TDP-43 and MND. I was wondering if the research is showing that the misfolded protein is a cause of some/all of the damage occuring in MND or if is it…[Read more]
-
Simeon became a registered member 2 years, 2 months ago
Hello Simeon,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns, or…[Read more]
Hello Simeon, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]