• S Jaworski became a registered member 3 years, 4 months ago

    • Hello S Jaworski, my name is Dagmar. I’m one of the forum co-moderators and wanted to welcome you and thank you for joining our forum! We hope you will take the time to go through all the open conversations that are in progress and feel free to join in. Also, if you don’t see existing topics addressing questions that are important to you, please post the question yourself or message me and I will start the discussion for you.

      If you have any questions or concerns or even suggestions, just let us know, and we will do our best to help you. Again, thank you for joining our forum – – I look forward to chatting with you!

      • Thank you so much Dagmar for your response to me My name is Susan and I live in Illinois I have been diagnosed for one year now as I stated. I have friends pushing to investigate Lyme disease even though I have tested negative 3 times from blood work with my doctors to date. I would have to go a different route and out of pocket for more testing. So any information you have would be wonderful. I am getting weaker with limb onset, especially walking. I was a flight attendant for 40 years and had to retire because of ALS I am 62 years old and am trying to figure out how to live with this. My husband is my caregiver and wonderful, yet this is so hard on him also as you know. I am involved with Les Turner and go to North Western ALS clinic here in Chicago. I am so grateful to have finally figured out how to get to this forum. I am not great with computers but I am learning! Thank you Dagmar, I love your articles, advise, and sense of humor in your writings

    • Hello S, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are glad that you joined us. Have a look around the discussion and threads and feel free to comment, ask questions and respond to other members. If you have suggestions on how to improve the forum just let us know.

      • Thank you so much Amanda. I am looking forward to being connected to the forum. Thank God for persons like you Susan Jaworski

        • Please let us know if you have any questions. We will do our best to research and find answers! Also, you are welcomed to respond to other members and share your experiences.

    • Hello everyone. Tomorrow marks one year diagnosed and I will be at Clinic for my 3 month check up Your article today Dagmar was so great. I still am trying to find that point of acceptance Last year I was walking with a cane and driving and now I have my AFO’s my walkers on every floor a chair lift to the second floor my transport chair my scooter and I am not driving Doctors say I am progressing Moderately!! Really? I sure do not think so. Now of course my friends and family all want to save me, and are pushing for me to be tested outside for Lyme which has been negative 3 times with traditional medicine Does anyone have information about this? Thank you everyone for any insight you may have on this subject. Susan J

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