ALS News Today Forums | ste | Activity https://alsnewstoday.com/forums/members/ste/activity/ Activity feed for ste. Tue, 07 Apr 2026 20:30:11 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 601884daa04cb96ebce666ee3016e918 ste replied to the discussion Navigating the health insurance gauntlet in the forum Caregivers and Family ​ https://alsnewstoday.com/forums/forums/topic/navigating-the-health-insurance-gauntlet/#post-25910 Thu, 12 Sep 2024 19:16:23 -0500 Reply to Navigating the health insurance gauntlet

Just so you are aware as I have been down this road with my wife, medicare will not pay for Radicava ORS. I am pretty sure they will pay for the infused version but then you would have to go to an infusion center every day for a couple of weeks every month or pay for a nurse to come to the house every day. We were paying for private…

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]]> f785ec52906ac659b2c4e4ffe3555e96 ste replied to the discussion An opportunity for Permobil users to share their story in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/topic/an-opportunity-for-permobil-users-to-share-their-story/#post-25499 Fri, 10 May 2024 18:20:49 -0500 Reply to An opportunity for Permobil users to share their story

How about stories of Permobile wheelchairs breaking down and how the company nor their reseller Numotion have any sort of customer service or expedited repair. People with ALS are dependent upon their wheelchairs for everyday life and when it breaks it represents a total disruption to their daily activities. Last month my wife’s M3 broke down…

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]]> 88b2c48e02076718ab520a131bed6919 ste became a registered member https://alsnewstoday.com/forums/activity/p/22828/ Fri, 10 May 2024 18:07:25 -0500 2