ALS News Today Forums Forums Boosting Our Voices ALS Awareness Month An opportunity for Permobil users to share their story

  • An opportunity for Permobil users to share their story

    Posted by Dagmar on May 9, 2024 at 12:34 pm

    Every month, the Permobil company highlights a Permobil employee or an end user of one of its wheelchairs or rehabilitation devices. And with this month being ALS Awareness Month, they’d like to feature someone with ALS who uses a Permobil chair.

    Details are below:

    Vision of Permobil Portraits: Humans are wired for connection and these connections are made when people can relate to experiences. Knowing someone else’s story provides this opportunity for others to relate, and everyone has a story worth sharing. Permobil Portraits are intended to connect, enhance, and expand our community through authentic storytelling.

    Process for sharing stories:

    • You will be asked to review and sign a document granting permission for your story, name, image, etc. to be shared.
    • I will send you a few questions to answer that you can send back to me.
    • You will send 3-5 pictures of yourself that you believe tell the story of your everyday life. Our graphic designers will use those images to create the branded social media posts and we will use them in the blog.
    • We will take the answers to your questions to draft a blog post and copy for the social media posts.
    • Content featuring your story may be shared on Permobil’s social media accounts, website, printed material, etc.

    For examples of the social media posts, be sure to check out the @PermobilUSA IG and FB accounts. The last one we did was You can find a blog post example here.

    Please respond directly to Hawken Miller by May 20. (Email: [email protected])

    Thank you,

    Hawken Miller

    Content Marketing Specialist

    Permobil Americas

    [email protected]

    Dagmar replied 1 month, 1 week ago 3 Members · 5 Replies
  • 5 Replies
  • Dagmar

    Member
    May 9, 2024 at 12:36 pm

    Forum members – – don’t miss this opportunity! We would enjoy learning more about you.

    • ste

      Member
      May 10, 2024 at 1:20 pm

      How about stories of Permobile wheelchairs breaking down and how the company nor their reseller Numotion have any sort of customer service or expedited repair. People with ALS are dependent upon their wheelchairs for everyday life and when it breaks it represents a total disruption to their daily activities. Last month my wife’s M3 broke down on a Friday night. No one at Permobile was available and the after hours support at Numotion was able to give me a repair appt at their facility 90 miles away on the following Monday, or someone could come to the house 3 weeks later. How is this acceptable and why are people already suffering with ALS being made to suffer further. How about Permobile stepping up and really helping the ALS community

      • Dagmar

        Member
        May 10, 2024 at 4:09 pm

        Ste, I am sorry to read about your unfortunate wheelchair experience. Wow, you didn’t get good customer support. I have asked my contact at the company if they can follow up with you. Dagmar

    • len-jax

      Member
      May 10, 2024 at 3:16 pm

      Hi Dagmar,

      Are you sending this on to Hawken or should I do that?

      Thanks,

      Len

      I have owned two Corpus M5 wheelchairs since 2016. We have been joined at the hip (so to speak) from day one! What caught my eye when first looking at wheelchairs was the Permobil online video clip of a guy using a urinal. I wanted to be able to do that, and I did! Guys tend to be pretty quiet in the bathroom, so there was a lot of silence, but everyone stole a glance. I do get some strange looks, many smiles, and a few; wow, that’s quite a wheelchair!

      I was an avid home chef and continued cooking with my first M5, creating meals because I could stand in it. Sadly, my fine motor skills have deteriorated, so I had to hang up my spatula.

      I am amazed at how helpful the M5 is. Thanks to its tilt function, I am still able to stand up to do transfers in the bathroom. I then put a six-inch carriage bolt in the hole for the chest bar to grab, along with the grab bar on the wall, to lower and get up from the toilet on my own.

      I can elevate above the display case at the grocery store deli counter to communicate with the attendant using my AAC device. I then move on to the frozen food section and stand to open the vertically hinged freezer doors to select anything I like.

      I just returned from a ten-day respite stay at a nursing home so my wife, Linda, could get a much-deserved break from her caregiver role. There, I spent ten days 24/7 in my M5, except for going to the bathroom. Thanks to my ROHO seat, I can do that comfortably. I find their standard beds very uncomfortable, so with a foam bolster to support my legs, I go from a standing position into a prone position to sleep in my wheelchair. I sleep well and can move any part of my chair to maintain comfort.

      People are always amazed at my independence, even though I can no longer walk or talk. The M5 allows me to do as much for myself as possible to lessen the load of those around me!

      • Dagmar

        Member
        May 10, 2024 at 3:57 pm

        Len-jax, please email Hawkin. I also will alert him to your reply on this site. Thank you for wanting to share your great Permobil story! Dagmar

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