@stedmanx1
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Michael Stedman replied to the topic The controversy surrounding Nurown – – A roundtable discussion in the forum Research Topics 1 year, 8 months ago
Kasper, first thank you for your service to this country. I appreciate your weighing in and making your perspective known. I am in no way going to characterize you as a lucky one, but the fact you have lived with ALS for 13-14 years makes you an outlier in the world of ALS patients. Based upon some commentary, it may be likely NurOwn helps s…[Read more]
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Michael Stedman replied to the topic The controversy surrounding Nurown – – A roundtable discussion in the forum Research Topics 1 year, 8 months ago
First of all, I am grateful for the education and perspectives provided within this forum. Many years ago, a casual friend of mine became afflicted with ALS and I saw him once or twice in the months preceding his demise and death. A year ago, I was reintroduced to ALS when my wife was diagnosed with it. Having a spouse with ALS is certainly a…[Read more]
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Michael Stedman became a registered member 1 year, 8 months ago
Hello Michael,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns or…[Read more]
Hello Michael, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I…[Read more]