Stephen O'Neill

Hi Sonsu, hope you are doing the best you can in our circumstances.

I use an NIV* at night, it took some getting used to and getting the pressures right, but i wouldn’t (couldn’t) go back now. Help with drooling issue, just a few tips i have found useful before i go on to the LVR Kit. I use a neoprine chin strap to keep my mouth closed, play…[Read more]

Hi there,

I am in Australia and have been looking in to obtaining Albrioza in Canada.

I have been in touch directly with Amymlyx Pharmaceuticals and they expect the drug to be available late July in Cananda, Here is Australia we have a scheme where y doctor can import it, but i need to find an outlet to buy it from like some of you have…[Read more]

Hi Everyone, hope you are all well.

I am keen to try the Radicava Ors, but i live in Australia, and it is not approved here yet.

I have a script from my doctors and can import the drug myself under the personal importation scheme or the SAS scheme, but i’m struggling to find anywhere to buy it online, can anyone help at all please?

Regards,

Stephen

Hi Dagmar, hope you are well and still using your bubble machine?

I have an LVR kit now too which helps you pump air in to your lungs to expand them and stretch the muscles around the lungs and its helped enormously with my lung capacity, i just thought i would mention it as its easy to use and very helpful.

I am trying to find out if AMX0035 is…[Read more]

Hi Everyone, Stephen here from Melbourne Australia.

Firstly, thank you all for your posts and contributions, it has led me to try many different supplements and hopefully they are doing some good, might be a bit to early to say for me for now. I was diagnosed Jan this year but started getting symptoms mid last year.

I had been having a lot of…[Read more]