@thomas
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thomas hubbard replied to the topic Applying for disability and medicare in the forum Living With ALS 5 months, 4 weeks ago
This website just leads around in circles, never provided any usable real information. It seems more designed for building membership and donations than actually helping somebody.
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Tom Hehir and
thomas hubbard are now friends 11 months, 3 weeks ago
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thomas hubbard replied to the topic Very very nervous … dont know what to do in the forum Diagnosis Information and General Questions 1 year, 1 month ago
Yo, Russell! My symptoms began as cramps and twitching in left leg and it was a couple of years before I noticed I could no longer articulate so well on my guitar. I went back to the medical center and waved my arms in the air and raised my voice and finally was sent for an MRI. Still no definitive diagnosis. Now after four MRIs by a succession of…[Read more]
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thomas hubbard posted a new activity comment 1 year, 2 months ago
Hello to Amanda and Dagmar, and thanks for the welcome.
My first of three diagnoses by separate neurologists was in 2015, but I noticed symptoms five years before that and began searching for a doctor who could explain why I was suddenly having trouble playing guitar. Now, at age 82 I am still able to walk a short distance. I’ve lost almost all…[Read more]
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thomas hubbard became a registered member 1 year, 2 months ago
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Hello Thomas, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]
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Hello Thomas,
Welcome to the forum! I am one of the forum moderators, as well as a person who is living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Hello to Amanda and Dagmar, and thanks for the welcome.
My first of three diagnoses by separate neurologists was in 2015, but I noticed symptoms five years before that and began searching for a doctor who could explain why I was suddenly having trouble playing guitar. Now, at age 82 I am still able to walk a short distance. I’ve lost almost all…[Read more]
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