| Short Bio |
Diagnosed in 2018: symptoms started 2 yrs earlier with muscle loss lower legs/feet, arms /hands, took two years for diagnosis… progress slow, have been on Radicava/endaravon  for 6 yrs.  Symptoms progressed to bulbar, yet still eating.  Retired physiotherapist, no vitamin supplements, still am active walking,golf,skiing,swimming, main issues are energy, weakness, fatigue, some ADL,s, love decided to live my life, enjoy what I can ,and not surrender .
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| How long have you or the person that you are caring for had ALS? |
7 yrs
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